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Family Support Team -information in response to Covid19

This is a challenging time for everyone and there is a lot changing and these changes are happening frequently.

With people being asked to work from home and people limiting their social interaction we felt it was important to make contact to inform you of how you can stay in touch and access support with the Family Support Team at Primrose Hospice.

Are you taking new referrals at the moment?

We are currently still taking referrals, however, there will be a longer wait than normal for an assessment appointment and these may need to be postponed in line with government advice. Please be aware we currently have a waiting list for direct support.

Will I still be able to see my support worker if I am already accessing support?

With things changing constantly it is hard to answer this question but your allocated worker will be in touch to discuss how they may be able to support you over the coming weeks and talk through your options. If you have not heard or would like to discuss this then please call the Family Support Team on 01527 889799

Can I still attend groups at Primrose?

Unfortunately all groups are on hold until further notice to reduce social contact.

Can I still call if I have a question or need some advice?

Of course. If none of the Family Support Team are available when you call then please leave a message and we will get back to you as soon as we are able to. Please be aware this may take longer than normal, but you are welcome to call again. Alternatively, please email info@primrosehospice.org and your message will be sent on to the team.

Where can I access support if I am unable to speak to my support worker?

There are many nationwide organisations who offer a variety of options for support for children and young people these are some of the ones we suggest:

Grief Chat Online

Online chat service for bereaved families

Widowed and Young

Service for families if you are under 50 and your partner dies. They have a large online community through their members only website.

Samaritans

‘We’re here, day or night, for anyone who’s struggling to cope, who needs someone to listen without judgement or pressure.’

Cruse Helpline

The Cruse Bereavement Care Freephone National Helpline is staffed by trained bereavement volunteers, who offer emotional support to anyone affected by bereavement. 0808 808 1677. You can also email helpline@cruse.org.uk. The helpline is open Monday-Friday 9.30-5pm (excluding bank holidays), with extended hours on Tuesday, Wednesday and Thursday evenings, when it’s open until 8pm.

Child Bereavement UK

Helpline for families and professionals ‘Our Helpline continues to operate as normal, providing confidential support, information and guidance to families and professionals. Our helpline team is available to take calls and respond to emails and Live Chat 9am-5pm Monday-Friday:’ 0800 02 888 40 support@childbereavementuk.org

Age UK

‘Age UK’s advice line is a free, confidential national phone service for older people, their families, friends, carers and professionals. Our team will give you information that is reliable and up to date and help you to access the advice you need.’ Age UK Advice Line: 0800 678 1602 Lines are open 8am-7pm, 365 days a year.

Are there any apps or podcasts that might be useful?

Headspace (app) – Your guide to everyday mindfulness in just a few minutes a day

Breathe(app) – to help you relax and focus on your breathing to reduce anxiety. The Breathe app guides you through a series of deep breaths, and it reminds you to take time to breathe every day. Choose how long you want to breathe, then let the animation and gentle taps help you focus.

Griefcast (podcast) – Griefcast is a podcast that examines the human experience of grief and death – but with comedians, so it’s cheerier than it sounds. Each week Cariad talks to a different guest about their experiences of grief.Together they share their views on the pain, loss and the weirdness that happens when someone dies.

Terrible thanks for asking (podcast) – You know how when someone asks ‘How are you?’ you just say ‘fine’ even if you’re totally dying inside, so everyone can go about their day? ‘Terrible, thanks for asking’ is the opposite of that. Nora McInerny asks real people to share their complicated and honest feelings about how they really are. It’s sometimes sad, sometimes funny and often both.

Is there anything I can be doing to help myself at home?

Distraction and balance – keep things balanced by planning and doing things you enjoy, such as playing on a games console, listening to music, baking, speaking with friends. It can also be helpful to try and notice one thing a day that makes you feel happy or positive. This could be anything like it being a sunny day, having something tasty to eat or a good conversation with a friend.

Keep connected – whilst we are unable to physically see our friends and family it is important to stay in touch, text, talk on the phone, face time etc. and be creative with how you do this. Video call whilst watching the same program or play games over video call.

Write things down – sometimes when our head feels full it is a good idea to write it down. If you’re worried about other people reading your thoughts then you could do this on your phone or rip the paper up once it is written.

Routine – It can be easy when there is little structure to our lives to get out of a routine, go to bed later and/or not eat properly. It is good for our mental health to try and keep some sort of routine and to make sure we are eating properly.

Get fresh air – Whilst we are social distancing we are still able to go out for walks – just ensure you are keeping two meters apart from anyone you meet whilst out. If you are isolating you can go out in your garden or if you don’t have a garden then open a window.

Keep active – Walk, run (in line with Government advice) or alternatively follow an online program. There are currently lots of people offering free videos including Joe Wicks who is running a daily PE session online at 9am.